SUPPORTERS OF THE OPEN LETTER 

TO THE UN SUMMIT ON NCDs

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(As at 9 May 2011)

The Letter:

1. What is the significance of the UN Summit on Non-Communicable Diseases (NCDs)?

The UN Summit on Non-Communicable Diseases (NCDs) in September 2011 will be an important meeting and has the potential to compare in significance to the 2001 high level UN Summit on HIV/AIDS, which marked a crucial turning point in the treatment of that disease. As happened in 2001 there is an emerging tension in 2011 between those who believe that such a meeting should concentrate on prevention, and those who believe that support and research into a cure for NCDs are also crucial. This is particularly so in regard to cancer, which is a major NCD affecting people in all areas of the world. Already, one significant European leader has argued that prevention is cheaper than disease management and that it makes sense to prioritise and pursue such policies, particularly because of the pressures on government expenditure. 

2. NCDs and Rare Cancers

A number of the signatories to this open letter are involved with the support of patients who have a so-called rare cancer, or a less common, or intransigent, cancer.  These diseases have utterly dire prognoses; cause enormous stress to patients, families and caregivers; and, when taken together, amount to a large group of cancers which suffer from an unacceptable level of unmet medical need in many parts of the globe, especially in developing regions. Very often the causes of these cancers are unknown, hence prevention is impossible.  Therefore, for rare and less common cancers, the focus should be on increased research and support. We therefore believe that it should be a major aim of the cancer input to the UN Summit on NCDs to ensure that the voices of those with unpreventable cancers are not ignored. This is particularly so with regard to all paediatric cancers which, because of low incidence rates, are by definition categorised as rare.  However, rarity does not reduce the devastating impact such a diagnosis has on both the individuals concerned and on the wider society in general.

3. Please help rare and less common cancers get the recognition they deserve.

The President of the United States said in September 2010: “…Cancer is still the leading cause of death by disease for young Americans between infancy and age 15.”  He added: “Tragically, the causes of cancer in children are largely unknown” and indicated his support for a greater research effort. While recognizing that for a few cancers prevention strategies are very relevant and admirable, we call on those associated with the 2011 UN Summit to ensure that – for people with rare and less common cancers – a greater effort is made for enhancing support and significantly increasing research.

The undersigned therefore requests that rare and less common cancers are formally acknowledged in the proceedings of the UN Summit on Non-Communicable Diseases (NCDs) as requiring a greater focus of attention by the worldwide cancer community.

Individuals and supporting organisations:

Denis Strangman, Chair, International Brain Tumour Alliance

Kathy Oliver, Co-Director, International Brain Tumour Alliance

John Symons, Cancer of Unknown Primary Foundation, UK

Chris Tse, Wellington, New Zealand

Simon Davies, CEO - Teenage Cancer Trust, UK

Sally Payne, Sydney, Australia

Karen Friett, Lymphoedema Support Network, UK
Ali Stunt, Pancreatic Cancer Action, UK

The cooperating organisations of the European Action Against Rare Cancers (EAARC) -

See: http://www.rarecancers.eu/?-27-Nov-2010-Open-Letter-2011-UN-

Deirdre Kohler, South African Brain Tumour Support and Statistics Group

Justina Smalskienė, Ugnius Smalskys, Liutauras (Kartu lengviau), Lucija,

Ana, Jurgita Visockien, Renata Semėnaitė, Indrė, Rita Juodienė, Rasa Margeviciene, 

Stanislovas Ratautas, Loreta Petronien, Ilvinas, Udrius Armalis, Ramūnas Šablinskas, 

Marius Vilimas, Birute, Griciene (Vilnius, Lithuania)

Miranda Oliver, UK

Jo Grey, Association for Multiple Endocrine Neoplasia Disorders (AMEND) UK

Sally Penrose, Lymphoma Association, UK

Robert Music, Jo's Cervical Cancer Trust, UK

Sheila Roberts, Scotland

Darlene Badovich, Cancer Foundation, Alberta, Canada

Tara Gent, Victoria, Australia

Sue Stewart, UK

Tanya Carter, UK

Julie Lowe, UK

Trudy Williams, Tanunda, South Australia

Stephany Dobbelstein, Sydney, Australia

Katie Sheen, Astro Fund, UK

Theresa Wadeson, UK

Antonio Silvani, Fondazione IRCCS Istituto Neurologico, Milano, Italy

Frank Boeye, Werkgroep Hersentumoren vzw, Belgium

Dr Filippo de Braud, European Institute of Oncology - IEO
Picrit Georges (Can ce tu? the French speaking Belgian brain tumour support group)
Petru Luhan (MEP - Romania)
Nessa Childers (MEP - Ireland)
Marisa Matias (MEP - Portugal)
Andre Pollweps, Leven Zools Vorheen
Jana Pelouchova, Diagnosa CML o.s.
Marlies Oom, EWM Network
Sandy Craine, CML Support Group and European Cancer Patient Coalition Rare Cancers Action Group
Charles Charalambous 
Robert Schaefer, European Action Against Rare Cancers
Robert Vermeuen, MD 
Patricia Garcia Prieto, European Cancer Patient Coalition
Lia Le Roy, Werkgroep Hersentumoren, Belgium
Henk Van Daele, European Cancer Patient Coalition
Mala Heal, European CanCer Organisation - ECCO
Tom Hudson, President, European Cancer Patient Coalition
Stephanie Devos, Can ce tu? the French speaking Belgian brain tumour support group
Kristina Andrekute, ROLLD Lithuania, the rare cancers organisation in Lithuania

Jean King, Cancer Research UK

Joaquim da Cruz Domingos, APDProstata, Portugal

Katarina Katavić, "For a new day", cancer patient association, Croatia ("Za novi dan")

Luisa Basset Salom, Valencia, ESPAÑA

Jose-Ramon Garcia Garcia, ESPAÑA
Ana Judez, Valencia, ESPAÑA
Gemma Caparrós, Asociación para la Lucha contra las Enfermedades de la Sangre (ALES) Jaén, ESPAÑA

Miguel Angel, Salamanca, ESPAÑA

Roberto Viejo González, Asociacion Galban, Valencia, ESPAÑA

Brendan O'Malley, Australia
Tony Gavin, Leukaemia CARE, UK.

Toya Smith
Irina Ban, ZVONCICA Childhood Cancer Parent Organization, Belgrade, Serbia,
Evelyn Griffith, CanTeen Ireland, Dublin, Ireland

Margaret Johnson, NACCPO, Cambridge, UK

José Navarro, Aspanion, Valencia

Jose Bernardo Garcia Blanquer, Aspanion, España

Reme Abad, Aspanion, España

Juan Carlos Sala Corts, Valencia, España
Amparo Roca Carrio, Valencia, España

Jeny Martín Castellón, España

Francisca Antón Quiles, Aspanion, España

Abby White, Daisy's Eye Cancer Fund, Oxford, England
Christine Davies, Daisy's Eye Cancer Fund, Kent, United Kingdom
Helen Dimaras, The Hospital for Sick Children & Daisy's Eye Cancer Fund, Toronto, Canada,
Yulia Mironova, Light of Crimea, Crimea, Ukraine

Danny TM Chan, CUHK Brain Tumour Centre, CUHK Brain Tumour Centre, Prince of Wales Hospital, Shtin, Hong Kong

王翔, 四川大学华西医院神经外科, 国学巷37号, , 成都, 四川省

Van Hoecke, Ronny, Harvey Cushing Center, Belgium

Heijmans Stéphane, ARESA asbl, Belgique

Jean-Yves Blay, Groupe Sarcome Francais (GSF)

Mike T. O'Maera, Daisys Eye Cancer Fund- Kenya, Nairobi, Kenya,
Diana Robinson, consumer rep with NCRN, York, UK,
Margaret Wilcox, Independent Cancer Patients Voice, Surrey, UK

Henry Allen, The Brain Candy Project, MA, USA,
Janet Micallef, Melbourne Victoria, Australia
Beverley Barnett, Epping, Australia
MaryAnne Rosier, Canberra, ACT, Australia
Associate Professor Gavin Davis, Department Neurosurgery, Cabrini Medical Centre, Victoria, Australia
Anne Feeley, Brains on Bikes, London, England
Sarah Georgiou, Magill, South Australia

Elizabeth Emmett, Victoria, Australia
Louise Young, Cottesloe, Western Australia
Xiang Wang, Department of Neurosurgery, West China Hospital, Chengdu, Sichuan, China,
Joannie McCutcheon (Patient Advocate), Edinburgh Centre Neuro Oncology, Midlothian, Scotland, United Kingdom
Jayne Auld, Adelaide, South Australia, Australia
Mikhail Laskov, Russian Cancer Research Center, Kashirskoe, Russia
Banu Prakash a s, Narayana Institute of Neurosciences, Bangalore, Karnataka, India

Michael Shelfer, Queensland, Australia

Ali K Xhoucair, MD, Mayo Clinic, Jacksonville, Florida,USA

Charles Grant, The Andrew McCartney Trust Fund for Brain Tumour Research, Gwynedd, United Kingdom
Charles Clift, London, United Kingdom
Helen Bulbeck, Brainstrust, Isle of Wight, UK
William and Susan Abbott, Philippine Brain Tumor Alliance, Quezon City, Philippines

Geoff Isaac, Meningioma Awareness Group, Queensland, Australia

Lynne Barty, Brain Tumour Action, Edinburgh, Midlothian, Scotland
Linda Cash, Penrose, NC, USA
Zheludkova Olga, Federal Scientific Clinical Center Hematology, Oncology & Immunology for children, Russia
Zuhir Alshehabi, Tishreen University - Faculty of Medicine, Syria

Shannon Bradbury, Melbourne, Australia

Kirsten Kincade, The Matthew Larson Foundation for Pediatric Brain Tumors, NJ, USA

Dr. Michael A.D. Ferguson, Koppang, Norway
Jimmy Thomas Efird, Brody School of Medicine, Greenville, USA

Mary Watkinson, London, UK

John Lake, London, UK
Alfia Dance, Queensland, Australia
Maria Solomou, Cyprus Brain Tumour Association, Nicosia, Cyprus

Simon Pugh, Simon Pugh Photography, Maastricht, Netherlands
Susan C. Pannullo MD, New York Presbyterian Hospital / Weill Cornell Medical Center, New York, USA
Annette Aiolupotea, Queensland, Australia
Sunit Das, University of Toronto, Division of Neurosurgery, Canada
David Fortin, Université de Sherbrooke, Quebec, Canada
Matthew Pitt, Brain Tumour Alliance Australia, ACT, Australia

Theodor Vesagas, Brain and Spine Tumor Center, Cardinal Santos Medical Ctr, Philippines,
Anna Salamero Boix, Lleida (Catalunya), Spain
Javie Dance, Oxenford, Australia
Beatrice Melin, Umeå University, Sweden
Dr Sophie Wilne, Nottingham University Hospitals NHS Trust, UK
Sheila Burns, Bournemouth, United Kingdom
Sarah Kirby, Nova Scotia Cancer Centre, Canada
Ashis Patnaik, SCB Medical College, Orissa
Nhan Paul TonThat, National Brain Tumor Society, MA, USA
Julianne Icatar, MD, CT, USA
Shenhong Wu, Stonybrook University Cancer Center, NY, USA
Jonathan Knisely, Yale University School of Medicine, Department of Neurosurgery, United States
Sherry Fox, Bon Secours Health System: Richmond, Va, USA
Virginia V. Jory, Georgia, USA

Mary Pat Lange, MD, KS, USA,
Femma Norton, Canadian Alliance of Brain Tumour Organizations, Ontario, Canada
Karen Jane Ackling, UK
Rocco Crescenzo, PA, USA
Roger Abounader, University of Virginia, USA
Prof Dr C Oliver Hanemann, Peninsula Medical School, Devon, England

Al Musella, DPM, Musella Foundation For Brain Tumor Research & Information, Inc, NY, USA
Dr.Peter Kalina, University Hospital Bratislava, Dept.Neurology, Slovak Republic
Dr. David R. Macdonald, London Regional Cancer Program, Ontario, Canada
Jacqueline Berry, PA, USA
Alexander Johansson, V. Frölunda, Sweden
Ibrahim Qaddoumi, St. Jude Children,s Research Hospital, Tennessee, USA
Jeanne Pasmantier, New Jersey, USA
Kristen Gillette, The Kortney Rose Foundation, NJ, USA
Sam W Mierzejewski, Ohio, USA
Zabiullah, Afghan Society Against Cancer, Ali Abad Teaching Hospital, Kabul, Afghanistan
Eric Galvez, mAss Kickers Foundation, San Diego, USA

Jessica Stovall, USA
Cathy Simon, Augusta, USA

Ann Juliet Gordon, Scotland
Rick Franzo, PA, USA
Leah Longan, PA, United States
Sue Roberts, Leap-for-a-Cure for Brain Cancer, NE, USA
John & Connie McClung, Texas, USA,
Ella Pybus, Meningioma UK, Suffolk, UK
David Korones, University of Rochester Medical Center, USA
M'Liz Keefe, MA, United States
Christine Forecast, Secretary, Astro Fund, Norfolk, UK
Kayron Hudson Warren, The Charles Warren Brain Tumor Awareness Foundation, Georgia, USA
G. Yancey Gillespie, University of Alabama at Birmingham, Neuro-oncology Program
Eric Bouffet, The Hospital for Sick Children, Ontario, Canada
Jacqueline Oswold, San Francisco, USA
Tammy Greschner, MN, United States
Ren Pedersen, The Cure Starts Now (Australia)
Melissa Dona, Nelson, New Zealand
Angela Deacon, Brain Tumour UK, United Kingdom
Krešimir Lončar, Zagreb, Croatia
Susan Pitt, Vice Chair Brain Tumour Alliance Australia
Young-Goo Han, University of California San Francisco, San Francisco, USA

Shannon Gerdel, WY, United States
Stella Poole, Rochdale, England
Judy Grim, H.O.P.E. With Support, Inc. MD, USA
Susan Johnson, Oakville, Australia

Deb Citron Stevens, Massachusetts, USA
Dr Nathalie Lokker, Berkeley, USA
Cara Elizabeth Duffy, IA, USA
Dr Sani Malami, Nigeria Cancer Society, National Head Office, Nigeria
Jonathan Finlay, Children's Hospital Los Angeles, California, USA

Melissa Rooker, OH, USA

Michael Barton, University of New South Wales, Liverpool Hospital, Australia

Kimberly Ries, Cancer Services, PA Hospital, Queensland, Australia,
Margaret Ingram, Deeragun, Australia,
Ana Munro, The University of Sydney, Australia
Fiona Allen, Victoria, Australia
Linda Aitken, Henley Beach, South Australia
Carrie William, Reno, NV, USA
Dr Ganes Pranavan, Medical Oncologist, Canberra Hospital, Australia

Gillian Gow, Chipping Norton, Australia
M. Jerry Day, Illawarra Neurosurgery/Head of Dept. of Neurosurgery Wollongong Hospital, Australia
David Korones, University of Rochester Medical Center, NY, US
Christine Mungoshi, Zimbabwe Brain Tumor Association (ZBTA), Zimbabwe

Dr Rakesh Jalali, Brain Tumour Foundation of India, Indian Society of Neuro Oncology, Mumbai, India

Trudy Roth, WV, USA
Diane Marthick, Tasmania, Australia
Wendy Mach, Nangang Dist., Taiwan
Desiree Ortiz Cruz, MD, Lawton, OK, USA
Lauren Jenkins, University of Western Australia

Mohamad Seyed Sadr, Montreal Neurological Institute, Canada
Dr. Rosemary I. Young, Clinical Haematology and Medical Oncology Unit, Royal Hobart Hospital, Tasmania, Australia
Ron Okkerse, Kura Yerlo Inc, South Australia

Victor A. Levin, Kaiser Permanente, California, USA
Carolyn L. Jewell, St.John's Catholic Church, Mich., U.S.A
Dinesh Singh, Galaxy Cancer Institute, Ghaziabad, India
Emil Makimbetov, Kyrgyz-Russian Slavic University, Bishkek, Kyrgyzstan

Dr Munish Gairola, SMH-Curie Cancer Centre, Delhi, India

Agatha Ngai, On Shan, Hong Kong

Ofelia Cruz, Hospital St Joan de Déu, Barcelona, Spain
Yolanda Ernst, Instituto Oncologico Del Oriente Boliviano, Santa Cruz, Bolivia
Jose Daniel Salvador Ruiz Gonzalez, National Cancer Institute Mexico, Mexico,
Maximina Lamelza, Hospital Andres Isola, Chubut, Argentina
Jose Cortes, NC, USA

van Weperen, Willem, Naarden, Nederlands
Wurdinger, Thomas, VU University medical center, Amsterdam, The Netherlands
Baksteen, Willem, Havixhorst, Nederland

Kaspers, Gert-Jan, VU University Medical Center, Pediatrics, Amsterdam, Netherlands

Antonio Silvani, Fondazione IRCCS Istituto Neurologico Carlo Besta, MIlano, Italia

Guido Minghetti, Associazione Italiana Tumori Cerebrali, Milano, Italia
Giovanni Camporeale, BrainLife.org, Milano, Italia
Elisabetta Mancini Camporeale, BrainLife.org, Milano, Italia

Y.K. Sparu, Cancer Patients Aid Association, Mumbai, India.
Sue C Goulden, NJ, USA

Molly King, Wellington, New Zealand
Olivia del Puerto, GSK Oncology, Brentford, UK
Yvette Chen, University of Melbourne, Australia

Cindy Villarreal, The Nick Gonzales Foundation for Brain Tumor Research, TX, USA

Clovis Fonseca, Brazil

Vladimir Tomov, National Alliance of People with Rare Diseases, Sofia City, Bulgaria
Charles Vecht, The Hague Medical Center, The Netherlands

Marianne Reynolds, Singleton Heights, Australia
Yvonne Anthoney, Gungahlin, Australia
Angela Collett, Brain and Spine Foundation, London, UK
Andras Fehervary, Novartis Farma S.p.A, Origgio, Italy
Dr Suzanne Birks, Cellular and Molecular Neuro-oncology, School of Pharmacy, University of Portsmouth, UK
Amanda Raymond, Moranbah, Australia
Gavin Peterson, Moranbah, Australia
Anthony Chalmers, University of Glasgow, Beatson West of Scotland Cancer Centre
Susanna Leto di Priolo, Novartis, Origgio, Italy
Kenneth Campbell, Leukaemia & Lymphoma Research, London, United Kingdom
Lyn Mynott, Thyroid UK, Essex, UK

Evguenia Balaganskaia, Mölnlycke, Sweden
Ian Ledger, Bucks, UK
Renuka Nadarajan, Sutton, United Kingdom
Patricia McColgan, Dublin, Ireland
Sue Wallace, Glasgow, Scotland

Melod Dardory, National Cancer Institute, Libya

Sarah Mamalai, Pearce, Australia
Diz Hackman, Royal Marsden Hospital, UK
Emma Townsley, University College London Hospital ,UK
Alla Detta, University Hospital Birmingham NHSFT, Dept Neurosurgery, UK

Margaret and Arthur Richardson, Gloucestershire, United Kingdom
Mark Newmiller, North Carolina, USA,

Cristy Burnett, The Cure Starts Now, Texas, United States
Karen Vickers, QE11 Health Sciences Center, Halifax, Canada
Dr. Julie Torode, Union for International Cancer Control (UICC), Geneva, Switzerland
Nathan J. Robison MD, Dana Farber Cancer Institute, MA, USA,
Cathy Perkins, MA, USA
Ricky Dean Coughlin, CA, USA
Debra Bria, NCD, Mass, USA
Kim Doron, Tali's Fund, Ontario, Canada
Cynthia Rixey Scott, CO, USA
Bob Heath, Sir Michael Sobell House Hospice, Oxford, United Kingdom,

Gary Fleming, Alabama, USA
med/Habil. Prof. Peter P Molnar, University of Debrecen, Medical and Health Sci Ctr., Department of Pathology, Hungary
Tami McBroom, CA, United States
Rose Woodward, Kidney Cancer Support Network, UK
Carol Knight, Surrey, England
Stephen Price, University of Cambridge, Neurosurgery Division, Dept. Clinical Neurosciences, UK
Allen Redmond, Vanderbilt University Medical Center Brain Tumor Center, USA

Russell Smith, London, Ontario, Canada
Jennifer Lee Wilson, CA, USA
Danielle Beaumont, Hamilton, New Zealand
Danae Hischke, WI, USA
Jo Binnie, Christchurch, New Zealand
Richard Buerger, IL, USA
Janice A Gladwin, Giralang, Australia
Sharon Crighton, Banora Point, Australia
Francesc Graus, Hospital Clinic, Barcelona, Catalonia, Spain
Francoise Meunier, European Organisation for Research and Treatment of Cancer (EORTC), Belgium
Paul Levitt, Paul Levitt Foundation, Surrey, UK
Nicolas Foroglou, Medical School, Aristotle University of Thessaloniki, Greece
Tadeusz Włodarczyk, the association of men with prostate diseases Gladiator, W.K.Roantgena Warsaw, Poland

Jackie Weaver, Oxford, UK
Alison Crichton, Arden Cancer Centre, Coventry, UK
Catherine Waldon, Cancer52, West Yorkshire, England

Anne Coles, Hammer Out Brain Tumours, Bristol, England
Pierrick Rollet, GSK Rare Diseases, Middlesex, UK
Jackey Weightman, British Acoustic Neuroma Association, Notts, UK

Christine Allmark, NCRI Consumer Liaison Group, Yorkshire, UK
David Watson, NHS, National Cancer Research Network, Co Durham, UK

Dr Maria Christidou, Southfields, London

Lia van Ginneken, European Myeloma Platform, Brussels, Belgium
Mark J Chrudimsky, WI, USA
Henriette Breunis, University Health Network, Toronto, Canada
d'Inverno Hugues, Alleur, Belgique
Prof. Philippe Paquier, Service de Neuropsychologie, ULB - Hôpital Erasme, Bruxelles, Belgique

Leenstra, Sieger, Erasmus Medisch Centrum, Rotterdam, Nederlands
Lamfers, Martine, Dr, Rotterdam, Netherlands
Klaes, Robert, Antwerpen, Belgie

Francesca Kozmann Scopetta, Il Fondo Di Gio Onlus, Trieste, Italy
Eugenio Pozzati, Dipartimento di Neurochirurgia Osp Bellaria, Bologna, Italy

Patrizio Fausti, Roma, Italy
Andrea Pace, National Cancer Institute Regina Elena, Roma, Italia

Abhijit Guha, Univ. of Toronto, Canada

Carol Kruchko, Central Brain Tumor Registry of the United States, Illinois, USA
Victoria Lee, PFAC, Pencer Brain Tumor Center, Canada
Michael S. Ryan, The 2-Young Foundation, VA, USA
Sue Stewart, Co Durham, UK

Guillemin, Luxembourg
Catherine Chenu, Chaville, France
Lorraine Rubino levy, New Jersey, USA
Blanc, Etoile de Martin, Fourqueux, France
Cazade Claire, boissy sous st yon, France
Pauvert Isabelle, Garenne Colombes, France
Blanc Patricia, Fourqueux, France
Lewandowski, Etoile de Martin, ile de France, France
Clariefond, Preignan, France

Esquirol, Ninon Soleil, rhône alpes, France

Paoletti Brigitte, Paris, France

Lady Penelope Mowbray and Stourton, PPRFoundation, North Yorkshire, United Kingdom

Linda Weatherston, UHN, Ontario, Canada

Magda Machanova, Regional Hospital, Radiation Oncology, Liberec, Czech Republic

Kim Garland, Pencer Brain Tumor Centre - Princess Margaret Hospital, Toronto, Canada

Hendrikus Krouwer, ProHealthCare Regional Cancer Center, Wisconsin, USA

Deborah Cacase, CT, USA

Lynne Terry, Ontario, Canada

Sheila Crabb, MO, USA

Bob Mitchell, On, Canada

Sarah Donnelly, MA, USA

Elaine Asplundh, PA, USA

Lorraine Rubino Levy, NJ, USA

Kathleen Capalbo, Middletown, United States

Carole Broadhust, IL, USA

Karen MacDowell, N.J. USA

Michele Polland, FL, US

Jessica Lee, CA, USA

Christy Brewsaugh, Oregon, USA

Julie Fleming, KS, USA

Meg Knowling, BC Cancer Agency - Vancouver, Canada

Juliette Hukin, BC Children's Hospital, Vancouver, Canada,

Peter Realf, Warwickshire., England

Heidi Martins, British Columbia Cancer Agency, Canada

Sheila Smith, Warwickshire, UK

Khojasteh Darbani, CA, U.S.A

Roland Yee

Sandi Myers, Indiana, USA

Lisa Ward, Maryland, U.S.A

Stanley Shrodo, Central NJ Brain Tumor Support Group, NJ, USA
Ellen Jannol, CA, USA
Audrey Samara, FL, USA
Deborah Hively, OR, USA
Tammy Jones, United Brain Tumour Support Group, Banora Point, Australia
Bob Aldersley, THE BRAINTRUST, Ontario, Canada,
Michael Jones, London, United Kingdom
Zvonarov Oleksiy, KCCNC, Sevastopol, Ukraine
Troy Kaizik, Kambah, Australia
Susan Marshall, Brain Tumour Foundation of Canada, Ontario, Canada
Lisa Klawender, Texas, USA
Bruce & Ann Prout-Richardson, Warwick, United Kingdom
Vorna Butler, PFAC/BC Cancer Agency, Canada
Mrs. Helen Alison, Worcestershire, England
Deborah Cummings, CA, USA
Vineet Chugh, Illinois, USA
Kenneth Fisher, Crafers West, Australia
Patricia Fisher, Crafers West, Australia

Amparo Jiménez de la Torre, Valencia, España

Blanc Frédérique, France
Vaugouin, Paris, France

Brocard, Marie-Claud, Vernouillet, France
Blanc, lion sur mer, France
Magne François, France

Dracos, Vaud, Suisse

Leenstra, Sieger, Erasmus Medisch Centrum, Rotterdam, Nederland
Lamfers, Martine, Dr Rotterdam, Netherlands

Klaes, Robert, Antwerpen, Belgie

Lars Paro, Svenska Hjärntumörföreningen, Sundsvall, Sweden

Norma D'Agostino, Ontario, Canada
Diane Hare, Texas, United State of America
Rosie Plummer, Toorak Gardens, Australia

Cheryl Kanter, Gerry and Nancy Pencer Brain Tumour Centre, Ontario, Canada
Gail Addison, Craigmore, Australia
Tony Knighten, Virginia, USA
Linda Matwichuk, British Columbia, Canada
Barrie Littlefield, Bondi, Australia
Lynne Greenlees, Woodrising, Australia
Nancy Condit, Wendy Pierson Foundation for Brain Cancer Research, VT, USA
Beryl Foulds, Stanmore, Australia
Ellie Scates, Boronia, Australia
Cassandra Duncan, Lynbrook, Vic, Australia
Diane Bier, NJ, USA
Scott Nussey, ABCSA, South Australia, Austrailia,
Linda Wernli, Utah, USA
Stephen Yip, BC Cancer Agency, Vancouver, Canada

Dr L.N. Tripathy, Medica Superspecialty Hospital,West Bengal, India

Vikram Muthusubramanian, Srinarayani Hospital and Research Center, Tamil Nadu, India

Mr Shazad Zamin, Brain Tumour UK, West Midlands, UK

Marie Hudspeth, CA, USA
Richard Hudspeth, CA, USA
Paul Opoku Agyemang, African Cancer Organization, Ghana
Duncan Tunstall, CLAN, Aberdeenshire, UK
Beverly Gauvain, Florida, USA

Blake Quinn, NJ, USA

Graham Barton, Ontario, Canada
Jo Binnieient, Canterbury, New Zealand
Linda Rickford, Surrey, UK
Margarita Williams, Talbingo, Australia
Mrs S K Rolfe, Surrey, United Kingdom
Loice Swisher, MD, PA, USA
Cathi Core, Leeds, UK

Cliff Atkinson, Middlesbrough, England
Rebecca Lee, Queanbeyan, Australia
NitoYasuhiro, Yokohama-shi, Japan

Fiagop, Modena, Italia
Marco Ghirlanda, Milano, Italia

Irona Fraser, Gerry & Nancy Pencer Brain Tumor Centre, Ontario, Canada

M. Kemp, West Midlands, England

王诚, 北京大学深圳医院, 北京大学深圳医院神经外科, , 深圳, 广东省, 518036, 中华人民共和国

Ioannis Roussos, Spain
Crsitina Borras Sierra, Valencia, España

Ghassoui Fadéla, L'étoile de Martin et Conseillère Municipale, Bouche du Rhones, France

Jane Robbie, Surrey, UK
Cilla Vinall, Surrey, Great Britain

Barbara Ledger, Lanarkshire, Scotland
Peter Blackett, RI, USA
Dr Karthika Nageswararaj, Sri Ramakrishna Hospital, Tamilnadu, India

Nancy Pye, PFAC/BCCA, BC, Canada
Michael Ardley, London, England

Zvonarov Oleksiy, kccpn, prof. Kyiv, Ukraine
Ольга Желудкова, Федеральный Научно-клинический центр детской гематологии, Москва

Salvador Villà Freixa, , HU Germans Trias. ICO Badalona, Catalunya, Spain
María S. Ah Chu, FANLYC, Panamá

Esnault Michel, GFME Glioblastome Association Michèle Esnault, Marseille, France

Boudab Kenza, Abu dhabi
Sagne, Paris, France

Rombauts, Klara, Antwerpen, België
Neyns, Bart, Brussel, Belgie

Jan Geissler, LeukaNET, Riemerling, Germany
Dr. Alexis Katechakis

Bianca Pollo, Fondazione IRCCS Istituto Neurologico Besta, Milano, Italy

Professor William E. Farrell, University of Keele, Staffordshire, UK
Anne V. Reeler, Axios International, Paris, France
Fiona Towers, Lane Cove, Australia
Georg Brabant, Manchester, UK
Sue Farrington Smith, Brain Tumour Research, Buckingham Bucks, England
Bernadette Byrne, Maggie's London, UK
Mary Burton, Astro fund, Norfolk, England
Julette Batara, Philippine Society for Neurooncology, Quezon City, Philippines
Ian Gibson, Norfolk, UK
M. Shahriar Salamat, University of Wisconsin, Madison, US
Colette Palise, Banksia Beach, Australia
Timothy O'Toole, MA
Kevin Hayes, Northern Centre for Cancer Care, Newcastle upon Tyne, United Kingdom
Jane Ireland, Leighton Park School, Berkshire, UK
Dr S Yoganathan, Colombo, Srilanka

Janusz Rak, Montreal Children's Hospital, Quebec, Canada
Danuta Rydlewska, European Cancer Patient Coalition, Brussels, Belgium

Mrs Jo Johnson, St George's NHS Healthcare Trust, London, UK,
Irena, LASKA, Korca, Albania
Kathi Apostolidis, Athens, Greece
Daniel Bowler, Brighton East, Australia
Phil Askham, Middlesex, UK
Robert Dubrow, CT, USA
Mr Venkat Iyer, North Bristol NHS Trust, Consultant Neurosurgeon, UK

Edward Quinn, Brainwaves Brain Tumour Support Group, Leics, UK

Marder, W. A., Basel, Switzerland
Singh D, G B Pant Hospital, Delhi, India
Philip Lupo, University of Texas School of Public Health, USA
Jay-Jiguang Zhu, MD, PHD, The University of Texas Health Science Center at Houston, USA

William Sullivan, CT, USA
Marc Symons, The Feinstein Institute for Medical Research, NY, USA
Kazem, Cancer Research, Omid Hospital, Iran
Gerry Sheehan, Ont., Canada
Vanessa Dampure , Shropshire, United Kingdom

Wolfgang Wick, University of Heidelberg, Germany
Sharon Richardson, Surrey, UK

Terry Richardson, Surrey, UK

Mohammad Faranoush, Mahak Children's Hospital, Darabad Tehran

Cheryl Broyles, Oregon, USA
David M. Peereboom, Cleveland Clinic Brain Tumor/NeuroOncology Ctr, USA
Idowu Olufemi, Neurosurgeon, Lagos, Nigeria
Natalie Jewitt, Princess Margaret Hospital, Ontario, Canada

Kathy Riley, We Can, Pediatric Brain Tumor Network, USA
Yi-Hong Zhou, University of California, Irvine, USA
Helen White, Royal Marsden NHS Foundation Trust, Surrey, UK
Jill Armbruster, Hawaii, USA
Helen Wheeler, Northern Area Health Service, Australia
Charlotte Tripp, East Sussex, UK
Allison Bishof, PA, USA
Thomas Odell, Hampshire, England
Martyna Adamowicz-Brice, Imperial College London, UK
Clare Ferrigno, MD, USA
Margie Lombardi, PA, USA
Erin Schwartz, The Max Foundation, WA, USA

Marie E. Beckner, MD, OH, USA

Nancy Thomason, Oklahoma Brain Tumor Foundation, USA

Habib Fakhrai, NovaRx Corporation, USA
Matt Pitt, Brain Tumour Alliance Australia, Canberra, Australia
Tim Erickson, Pascoe Vale, Australia

Allison O'Dea, Sydney Neuro-Oncology Group, Australia
Wilson Family, Inverloch, Victoria, Australia
Gayle Stroop, Wonthaggi, Australia
Dr James R Perry, Chairman, Canadian Brain Tumour Consortium, Ontario, Canada
Kim Edelstein, Princess Margaret Hospital, Canada
Linda Fowler, Hamilton, New Zealand
Sally White, Wonga Park, Australia
Lynda Whitaker, Kilmore, Australia
Wendy Mayne, Williamstown, Australia
Adewunmi Adeoye, University of Ibadan, Nigeria

Zuhir Alshehabi, Tishreen University - Faculty of Medicine, Syria
Juliana Brennan, Blackwood 8, Melbourne, Australia

Ben Ponton, Newcastle upon Tyne, UK
Catherine Blotner, mAss Kickers Foundation, Michigan, United States

Lawrence Moore, Notting Hill, Australia

Amanda Rice, South Yarra, Australia
Marie Keep, Forster, Australia
Susan Trangucci, PA, USA
Theresa Powers, PA, USA

Ian E. McCutcheon, University of Texas M. D. Anderson Cancer Center, USA
Marie Hudspeth, CA, USA
Richard Hudspeth, CA, USA
Phil Readman, Singapore
Danette Langbecker, Brisbane, Australia
Ronald Allan Rutty, Benguet, Philippines
Angela B DeElse, PA, USA
Lyn Hodgkinson, Shailer Park, Australia
Rose Muenker, SD, USA
Michael Callaghan, Wonga Park, Australia
Ross Outen, Wandin, Australia
Dr R.J.Hood, Merseyside, England

Dr Roula Farah, CHANCE Association, Beirut, Lebanon

Brendan Dix, Maryborough, Australia
Dr HA Leaver, SNBTS, Edinburgh, Scotland
Omar Pathmanaban, Manchester, UK
Keith Desserich, The Cure Starts Now Foundation International, USA
Vicky Galbraith, Scotland
Caroline Chung, Princess Margaret Hospital, ON, Canada
Mariya , Bakalets, Ontario, Canada
Yvette Pyle, Lancashire, England
Jim Palma, TargetCancer, MA, USA
Jill Shields, Canadian von Hippel-Lindau Family Alliance, Ontario, Canada
Tezer Kutluk, Turkish Association for Cancer Research and Control, Atac Yenisehir-Ankara, Turkey
Michael Ambrogi, Novocure, NH, USA
Alan Jelliss, UKCatherine Morrissey, British Columbia, Canada
Suzanne Priestley, Office of the Child Safety Commissioner, Victoria, Australia
Ellie Mary Scates, Victoria, Australia
Trevor & Frances Williams, Nerrena, Victoria
KJ Lage, CA, USA
Hannah Richardson, United Kingdom
Helen Bulbeck, brainstrust, Isle of Wight, UK
Pat Hood, Derian House Children's Hospice, Lancashire, UK
Laurentine Ndo, Lancashire, United Kingdom
Betsy Cheong, Singapore
Jackey Weightman, British Acoustic Neuroma Association, Notts, UK
Gerald Ross and Faith Ross, Ontario, Canada
Spencer Fraser
Rosemary Wormington, Worcestershire, UK

Felicity Martin, Member of Brain Tumour Facility (Ajax), On, Canada

Paula Hennessy, Ajax, Ontario, Canada
Rober, Ajax, Ontario, Canada

Matthew Hennessy, Ajax, Ontario, Canada
Erin Hennessy, Ajax, Ontario, Canada
Bonnie Ashby, Ontario, Canada

ofelia cruz, oncologia pediatrica, Barcelona, Spain

Ghassoui Fadéla, L'étoile de Martin et Conseillère Municipale, Bouche du Rhones, Paris, France
Christine de Bonduwe, ARTC, Hôpital de la salpétrière, Paris, France

Theresa Ashby, Ontario, Canada
Melissa Marchioni, Ontario, Canada
Christine Gilbank, ON, Canada
Helen Belina, ON, Canada
Wendy D. Kaye M.D., Students Supporting Brain Tumor Research, AZ, USA
Nantakorn Dhanasilankura, Bangkok, Thailand
Sharon Sambrook, Worcestershire Brain Tumour Support Group, West Midlands, UK
Robert Taylor, King Tanktechnic Ltd, Lancashire, England
Stephen King, King Tanktechnic Ltd, Lancashire, England
Raymond King, King Tanktechnic, Lancashire, England
Kai King, King Tanktechnic, Lancashire, England
Richard Lovery, King Tanktechnic, Lancashire, England
Bob Taylor, West Yorkshire, England,
Judith Taylor, West Yorkshire, England
Gavin Dix, CVRS, Maryborough, Australia
Linda Ebbutt, Birmingham, UK

Karley Vaughn, Michigan, U.S.A.
Susan Allen, Derian House Children's Hospice, Lancashire, United Kingdom
Patricia Clarkson, Derian House Children's Hospice, Lancashire, England
T. S Hnatiuk, Pickering, ON, Canada
Jean Holden, Derian House Children's Hospice, Lancashire, UK
Andrew McKerracher, Katie McKerracher Trust, Selkirkshire, United Kingdom
Alf Hayes - Deputy Head of Care, Derian House Childrens Hospice, Lancashire, England
Catherine Bacot, FL, United States

Jane Beale, Dunhampstead House, Worcs, England
Patricia Moate, NCRI, Dorset, UK
Deborah Jones, Solihull, England
Nikhil Batra, Pune, Mahrashtra
Melissa Farber, IL, United States
Catherine McNeill, Pontypool, ON, Canada
Charles Eberhart, Johns Hopkins University, MD,USA,

Jaclyn McCrorie, Ajax, Ontario, Canada
Lorraine Thackeray, Pickering, ON, Canada
Dr Jainul Barikhan, Al-Nour Specialist Hospital, Makkah, KSA

Joana Cardoso, Lisbon, Portugal

Kathy Lasher, PA, USA

Jenny McCabe, Derian House Children’s \Hospice, Lancashire, England

Lisa Hiegl, PA, USA

Patricia Kearns, Derian House Children’s Hospice, Lancashire, England

Sue Barton, Derian House Children’s Hospice, Lancashire, UK

Sandy True, IL, USA

Kieran Widdowson, West Midlands, England

Francine Farber, NY, USA

Pat Cooke, Worcestershire, United Kingdom

Sidney E. Croul, MD, UHN Pathology, Toronto, Canada

Carol A Adams, Revera Health Services, Canada

Joseph J. Love, IL, USA

Jane Butler, CA, USA
Chris Lindstrom, IL, USA
Anna Chomiak, IL, USA
Girma Anbasie Ordolo, Health Service in Angacha area, Ethiopia

Olga ODonnell, NY, USA

Carlos Garbino, Societe internationale de Senologie, Montevideo, Uruguay

Dr. Lori Landrio, New York, USA
David Farber, IL, USA
Tami Potts, IL, United States
Joyce Harvey, IL, USA
Andy Stokes (Chair), Adult Brain Cancer Support Association Inc., South Australia, Australia
Rosel Stokes, Adult Brain Cancer Support Assoc. Inc. (ABCSA), Salisbury Downs, Australia

Alba Brandes, Oncologia Medica-Bellaria Hospital, Padova, Italia

Domas Tartilas, Aalborg, Danija

Inma Llauradó Oller, Fundación de Oncología Infantil Enriqueta Villavecchia, España

Ana Fernández Marcos, Asociación Española Contra el Cáncer, Madrid, España

Felipe Valdivia MD, FACS, Santiago, Chile

Jennifer Hodge, GA, USA
Tom Wyvill, Google Inc, NY, USA
Elizabeth Realf, Warwickshire, England
Sue Corkill, Cancer Society of New Zealand - Wellington Division, New Zealand
Dr Martine Meyer, St Helier Hospital, Surrey. UK
Mary Mitchell-Dick, Indy Carcinoid Awareness Network, USA

Janet Denny, Brain Tumour UK, West Sussex, UK
Ufuk Abacioglu, Marmara University Faculty of Medicine, Istanbul, Turkey

Joanne Byrne, N.J., USA
Kerryn Drennan, Wonthaggi, Australia
Pat Cooke, Worcestershire Brain Tumour Support Group, UK

Pilar Hernández Montuenga, Fundació Roses Contra el Cancer, Girona, Spain

William McHugh, Australian Prostate Cancer Research Centre - Queensland, Australia
Peter Andreas Heuch, Hjernesvulstforeningen (The Norwegian Brain Tumour Society) , Oslo, Norway
Mary M. Kelly, TN, United States
Robert De Rose, Endeavour Hills, Australia
Khushwant Harris, Endeavour Hills, Australia
James Floyd De Cheser, Honolulu, Hawaii, United States
Sharon Hodgson, MP, UK Parliament, United Kingdom
Joana Cardoso, Santiago do Cacém, Portugal
Helen Ciavarella, Bundoora, Australia
Lyndsay Utke, MSU ROTC, MI, USA
Karen Richmond, Hampshire, England
Gabriele Sanchez, TX, USA
Jonathan Sanchez, TX, USA

Danuta Jazłowiecka, Poseł do Parlamentu Europejskiego, Bruxelles, Belgium

Pilar Hernández Montuenga, Fundació Roses Contra el Cancer, Girona, Spain

Nguyen, Antibes, France

Denis, Louis, Oncologisch Centrum Antwerpen - Europa Uomo, Belgium

Kubben, Pieter, Maastricht, Netherlands
Zwinkels, Hanneke, Zuid-Holland, Nederland
Van Bauwel, Antwerpen, Belgie
Stultiens, Carolina, Antwerpen, Belgie

Domas Tartilas, Aalborg, Danija
Šarūnas Narbutas, European Cancer Patient Coalition, Vilnius, Lietuva
Sigita, Vilnius, Lietuva

Judith Reimann, Caring for Carcinoid, Indiana, USA

Matthew Heemskerk, Vancouver, Canada

Kestemont, Elisa, Kapellen, Belgie

Robert Montgomery, CA, USA
Roxanne Carroll, IL, USA

Louise Bayne, Ovacome, London, United Kingdom

Angela Deacon, Brain Tumour UK, Warks, UK
Edite Estrela, Member of the European Parliament, Portugal
Elizabeth Becker, Meagan's Walk: Creating A Circle of Hope, Ontario, Canada

Kestemont, Elisa, Kapellen, Belgie
van Dongen, Etienne, Amsterdam, Nederland

Edel Fitzgerald, SIOP Europe - European Society for Paediatric Oncology, Brussels, Belgium

Lina, Kaunas, Lietuva

Emmanuel Prempeh, Dream Care Tumour Foundation, Ghana

David Grant, Kent, United Kingdom
Craig Kelly, WA, USA
Michele Aizenberg, MD, UNMC, NE, USA
Ronald Segall, APhA, MO, USA
Al Croke, IL, USA

Patricia Coleman, MP, US
Martin Klein, VU University Medical Center, Amsterdam, The Netherlands

Jenny Baker, Brain Tumour UK

D. Daniels, UK
Jeffrey Tuan, Fondazione CNAO, Pavia, Italy

Tateo Kawamura, Kanagawa-ken, Japan
Yasmin Lassen, Aarhus University Hospital, Danmark