LINKS TO BRAIN TUMOUR PATIENT AND CAREGIVER GROUPS


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Accelerate Brain Cancer Cure

Accelerate Brain Cancer Cure has a singular focus - to hasten the discovery of a cure for brain cancer.

ABCNewLogoE.jpg Adult Brain Cancer Support Association

The ABC Support Association is located in South Australia and is focussed on giving support, encouragement, help and guidance to adults diagnosed with brain cancer, their families, friends and carers.

Adult Ependymoma

A website dealing primarily with adult ependymomas.

/uploads/images/website-links/wl-alisdream.gif Ali's Dream

A UK-based charity established to raise funds for research into childhood brain tumours.

/uploads/images/website-links/Alinoe031207a.jpg Alinoe

Alinoe (Association Lilloise de Neuro-Oncologie) is a patient-oriented organisation providing information and support to brain tumor patients and their families in the Lille area (north of France)

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American Brain Tumor Association

Founded in 1973 out of a desperate need, the American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.

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Andrea's Gift

A brain tumour charity active in the Yorkshire area of the UK.

Andrew McCartney Trust Fund

Funds scientific and medical research into the causes of brain tumours, and builds public awareness of the challenges of this disease.

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Angels Among Us

The Angels Among Us 5K and Family Fun Walk is a celebration of life, strength, courage and commitment. This volunteer organization was established to support the mission of hope at the Preston Robert Tisch Brain Tumor Center at Duke (Durham NC, USA).

/uploads/images/website-links/ARTCSud1.jpg ARTC Sud

Ce site s’adresse à tous ceux qui souhaitent s’informer sur les tumeurs cérébrales cancéreuses et sur la recherche en neuro-oncologie et à ceux qui désirent faire progresser cette recherche.

Astro Fund

A UK group offering information, inspiration and hope to all those living with a low-grade brain tumour.


Barbara DiStase Memorial Walk


This walk is in memory of Barbara DiStase and will be held on August 2, 2009 in New Jersey (USA).


Michael G. Belz Foundation

This US group seeks to create Hope:

Helping to live and celebrate life after diagnosis. Offering emotional support. Providing resources. Education that promotes a global awareness of research and treatments

Beyin Tumori Tedavisi

Blog for Turkish brain tumour support group.


/uploads/images/website-links/BrainSpine1a.jpg Brain and Spine Foundation

The (UK) Brain and Spine Foundation seeks to develop research,education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine and to stimulate the greater allocation of resources across all neurological disorders.

/uploads/images/website-links/BTAN1a.jpg Brain Tumor Action Network

The Brain Tumor Action Network is a US-based not-for-profit organization established to bring awareness to the general public about brain tumors and to educate and empower brain tumor survivors, their families and friends.

/uploads/images/website-links/AwarenessOrg1a.jpg Brain Tumor Awareness Organization

The Brain Tumor Awareness Organization is an on-line resource for raising brain tumor awareness and gaining support.
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Brain Tumor Foundation for Children

The Brain Tumor Foundation for Children Inc is a Georgia (US) based support, information, and fund-raising organisation for children with brain tumors.

/uploads/images/website-links/wl-brain.gif Brain Tumor Resource and Information Network

Based in Virginia, USA

/uploads/images/website-links/wl-bts.gif Brain Tumor Society

The Brain Tumor Society exists to find a cure for brain tumors. It improves the quality of life of brain tumor patients, survivors and their families and raises funds to advance carefully-selected research projects.

/uploads/images/website-links/wl-btauk.gif Brain Tumour Action

A voluntary group based in Scotland which concentrates on support, counselling, education, information and research.

Brain Tumour Alliance Australia

Brain Tumour Alliance Australia (BTAA) is the only national brain tumour patient and caregiver organisation in Australia.

  Brain Tumour Association (Western Australia)

The Brain Tumour Association (Western Australia) is a support group for patients and caregivers.

/uploads/images/website-links/BTFC150907A.gif Brain Tumour Foundation of Canada

The Brain Tumour Foundation of Canada is the major non-government brain tumour organisation in Canada.
/uploads/images/website-links/wl-btfi.gif Brain Tumour Foundation of India

A support group for patients and Doctors.


Brain Tumour Research

Brain Tumour Research specifically funds brain tumour research at UK centres to accelerate progress and improve patient treatments and outcomes
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/uploads/images/website-links/wl-btuk.gif Brain Tumour UK

Formerly UKBTS. A UK-based organisation involved in research, education and support.

/uploads/images/website-links/wl-brainlife.gif Brainlife

An electronic newsletter which lists relevant articles from professional publications and is archived at the above website.

/uploads/images/website-links/BrainstrustUK.gif Brainstrust

The Meg Jones (UK) tumour charity - supports people diagnosed with critically sited brain tumours difficult to remove using conventional surgery.

Brainwaves NI

Brainwaves NI is a Northern Ireland based charity dedicated to providing support and information to those people affected by brain tumour. 

British Acoustic Neuroma Association

 BANA is organised and administered by people affected by acoustic neuroma, is a registered charity and exists for mutual support, information exchange and listening.

BT Buddies

A UK group offering information, inspiration and hope to all those living with a high-grade brain tumour.

/uploads/images/website-links/wl-btsurvivor.gif BT Survivor group

"A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise."

/uploads/images/website-links/CABTO1a.jpg Canadian Alliance of Brain Tumour Organisations

The Canadian Alliance of Brain Tumour Organizations (CABTO) is an alliance of volunteer organizations, dedicated to enhancing the quality of life of brain tumour patients and families.
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Charles Warren Brain Tumor Awareness Foundation

The Charles Warren Brain Tumor Awareness Foundation, based in Georgia, USA, seeks to "significantly raise awareness of the disease of brain tumors so that a cure can be found more quickly". It directly supports the Preston Robert Tisch Brain Tumor Center at Duke University.
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Charlie's Challenge

Charlie’s Challenge is a UK-based charity which raises money to finance urgently needed research into children’s brain tumours.

/uploads/images/Childhood.jpg Childhood Brain Tumor Foundation

The Childhood Brain Tumor Foundation of Maryland "supports and funds basic science or clinical research for childhood brain tumors".

/uploads/images/website-links/wl-cbtf.gif Childrens Brain Tumor Foundation

The NY-based CBTF, founded in 1988, seeks to "improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors ...".

/uploads/images/website-links/Musella260907A.jpg Clinical Trials and Noteworthy Treatments for Brain Tumors

Regarded as one of the most comprehensive brain tumor websites in the English-speaking language.

  Desmoplastic Infantile Ganglioglioma

Website for Gareth Brandon (Fife, Scotland) who has a rare Desmoplastic Infantile Ganglioglioma paediatric brain tumour.

/uploads/images/website-links/wl-gbta.gif Deutsche Hirntumorhilfe e V

A non-profit, German-based independent organisation, which raises funds for the advancement of neuro-oncological research and the improvement of medical health care for brain tumour patients.

  Emory Brain Tumor Support Group

The Emory Brain Tumor Support Group (Georgia, USA) provides an opportunity for information-sharing and support among patients diagnosed with a brain tumor, be it malignant, benign or metastatic.

Ependymoma on-line support group

An on-line support group facilitated by Bruce Blount.
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Fitzy's 5 km Run/Walk

This annual run/walk raises funds for brain tumor research and support activities in honour of 20 YO Lauen M Fitzgerald who passed away in 2005. Funds are administered through the Berks County Community Foundation.

The Alicia Pueyo Fund (Fondo Alicia Pueyo)

This Spanish organisation was created with the mission to promote and support research on childhood brainstem tumors, in order to develop new treatments and drugs that may offer an early cure for all children affected by this terrible disease.

/uploads/images/website-links/gentlegiant.gif GentleGiant UK

GentleGiant UK is a website devoted to pituitary tumours.
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GFME

Glioblastoma fundation Michele Esnault is a French-speaking group for brain tumour patients.

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Glio Blast Off

The US-based Glio-Blastoff 5K Fun/Walk has been created to raise monies for brain cancer research

/uploads/images/website-links/wl-gliomasupport.gif Glioma Support Group

The international forum dedicated to those affected by low-grade gliomas.

Gray Matters Foundation

The Gray Matters Foundation is a 501(c)(3) organization whose mission is to support and empower people impacted by brain tumors through outreach, awareness and assistance program.

/uploads/images/website-links/HammerOut110907A.gif Hammer Out

Hammer Out is a UK brain tumour charity active nationally and in the South West region of England.
  Have A Chance

Have A Chance is a New Jersey (US) based not-for-profit organization dedicated to helping individuals and families impacted by a brain tumor find the most appropriate and innovative therapies.
/uploads/images/website-links/wl-headstart.gif Head Start

Intended to give sufferers in New Zealand a Head Start when they are battling brain tumours.

/uploads/images/website-links/wl-hersentumor.gif Hersentumor.nl (The Netherlands)

A patient-oriented organisation in the Netherlands whose aim is to prevent and cure brain tumours.

Hjernesvulstforeningen (Norway)


This is the Norwegian Brain Tumour Association which is part of the Norwegian Cancer Society.
hjernetumor.dk (Denmark)


A brain tumour support and advocacy group based in Denmark (Website might not be active.)

/uploads/images/website-links/GioLogo1a.jpg Il Fondo di Gio ONLUS

Il Fondo di Gio ONLUS is an Italian brain tumour charity named in honour of Gio, the young son of Francesca Scropetta, who passed away from a brain tumour. Francesca may be contacted at ilfondodigio at alice.it (substitute @ for at)

Italia - Glioblastoma Multiforme - cancro al cervello

Italian glioblastoma Facebook website.
/uploads/images/website-links/JapaneseFlag.jpg Japan Brain Tumor Alliance

The website for the Japan Brain Tumor Alliance is in Japanese.
  Japan Pediatric Brain Tumor Network

The website for the Japan Pediatric Brain Tumor Network is in Japanese.

The Jeffrey Thomas Hayden Foundation

The Jeffrey Thomas Hayden Foundation is a registered non-profit 501c(3) US-based organization dedicated to helping kids affected by cancer.

Just One More Day

Just One More Day is committed to providing information and support for families affected by diffuse intrinsic pontine glioma.
kartu lengviau

The First and the Only One Internet Page and Support Group for Brain Tumour Patients and Their Carers in Lithuania.
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Katie's Kids for the Cure

Katie's Kids for the Cure, which is based in the USA (Philadelphia), is a tax exempt public benefit foundation and has the singular goal of finding a cure for pediatric brain tumors.

Levi's Star

Levi’s Star, in memory of Levi Ringer, is a new UK charitable organisation which aims to support children with brain tumours and other serious neurological conditions.

/uploads/images/website-links/MakingHeadway1a.jpg Making Headway

Making Headway Foundation Inc. is a US (Chappaqua, NY) based not-for-profit organization dedicated to the Care, Comfort, and Cure of Children with Brain and Spinal Cord Tumors.

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Meagan's Walk: Creating a Circle of Hope

Meagan's Walk, held on Mother's Day, raises awareness about paediatric brain tumours and funds for research. Participants conclude the walk with a circle around SickKids Hospital, Toronto, Canada.
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Meningioma Mommas

Meningioma Mommas is a 24/7 online support group for all those affected by meningioma brain tumors.  The non-profit organization is also committed to raising funds for meningioma specific research.


Meningioma UK

The only UK organisation for support and information for patients with meningioma tumours of the brain and spine. Thirty per cent of all primary brain tumours are meningioma tumours.
 
  Michael Quinlan Brain Tumor Foundation

The Michael Quinlan Brain Tumor Foundation is dedicated to empowering those persons who have been affected by brain tumors.

  Monmouth and Ocean County Brain Tumor Support Group

The Monmouth and Ocean County Brain Tumor Support Group is a US-based (New Jersey) brain tumor support group.


National Brain Tumor Society

US based patient organisation with information about treatment, medical centres, clinical trials and survivor network.

/uploads/images/website-links/NikisHope1a.jpg Nikki's Hope

The ultimate goal for Nikki's Hope Foundation is to raise funds for research to find the cause and cure for brain tumors and to assist families of children battling brain tumors.
/uploads/images/website-links/Oklahoma1.jpg Oklahoma Brain Tumor Foundation

OKBTF is dedicated to meeting the needs of Oklahoma families, caregivers and patients affected by primary brain or central nervous system tumors.


Pediatric Brain Tumor Foundation of the US

Seeks to find the cause and cure of brain tumors in children.

/uploads/images/website-links/PLGA1a.jpg Pediatric Low Grade Astrocytoma Foundation

The US-based Pediatric Low Grade Astrocytoma Association (PLGA) seeks to raise awareness, funding, and find a cure for this disease.

/uploads/images/website-links/Pencer.jpg Pencer Brain Tumor Centre

This Canadian centre was founded to provide information, treatment and support for brain tumour patients and their families all in one “Centre of Excellence”
ROC On! (Run Over Cancer)

ROC On! (Run Over Cancer) was developed by Laurie Dangler, M.D., brain cancer patient, to organize people to run or walk all or half of the Columbus Marathon and raise funds for research at The Ohio State University's Arthur G. James Cancer Hospital.

/uploads/images/website-links/wl-sdbtt.gif Samantha Dickson Brain Tumour Trust (UK)

The largest single funder of laboratory based brain tumour research in the UK.

/uploads/images/website-links/SanDiego1a.jpg San Diego Brain Tumor Foundation

The San Diego Brain Tumor Foundation (SDBTF) was created to support the Brain Tumor community in San Diego (USA).

Sontag Foundation

The Sontag Foundation, a private foundation in the US, seeks to improve the lives of brain tumor patients by funding brain tumor medical research.  Our grants support the work of outstanding early career scientists in the US and Canada.  We also assist a brain tumor patient support group  in Jacksonville, Florida.

/uploads/images/website-links/wl-sebtf.gif Southeastern Brain Tumor Foundation

The Southeastern Brain Tumor Foundation is based in Atlanta, Georgia and seeks "to improve the quality of life for brain tumor patients and their families".

The Spinal Cord Tumour Forum

This is a website for people in the UK who have had, or whose lives have been affected by, benign spinal cord tumours. 

STOPhersentumoren.nl

A Dutch Foundation established to raise public awareness and funding for urgently needed brain tumor research to find the cause and cure for brain tumors more quickly.

/uploads/images/website-links/wl-sbtf.gif Svenska Hjärntumörföreningen

Swedish Braintumour Foundation is a brain tumour support group established in Sweden.


Tali's Fund

Tali's Fund was set up in remembrance of four-year-old Tal Doron, who died from a brain tumor. The Fund raises money for research projects at SickKids Hospital (Canada) and helps provide emergency funds for families with a child undergoing treatment.

Teenage Cancer Trust

The TCT’s top priority is building units in NHS (UK) hospitals specifically for teenagers with cancer.

/uploads/images/website-links/IvyFoundn1a.jpg The Ben and Catherine Ivy Foundation

The objective of the US-based Ben and Catherine Ivy Foundation is to fund research that will offer brain tumor patients a wide choice of effective treatments that provide for a long term, high quality life.

/uploads/images/website-links/Kaminsky1a.jpg The Brad Kaminsky Foundation

The Brad Kaminsky Foundation seeks to raise awareness of brain tumors, to raise funds for research, and is also dedicated to providing support and resources to those affected by this horrible disease.

/uploads/images/website-links/BrainCandy1a.jpg The Brain Candy Project

The Brain Candy Project aims to support the needs of parents/guardians living in the hospital with their children who are recovering from brain cancer and other brain traumas.

/uploads/images/website-links/EdEvans1a.jpg The Ed Evans Foundation

The Ed Evans Foundation, in memory of 27 year old Ed Evans who passed away in 2007, is based in Wales, UK, and raises funds for cancer and brain tumour charities.

/uploads/images/website-links/wl-braintrust.gif The Healing Exchange Brain Trust

Provides support services for people affected by brain tumors and related conditions.

/uploads/images/website-links/KellyHeinz1a.jpg The Kelly Heinz-Grundner Brain Tumor Foundation

The Kelly Heinz-Grundner Brain Tumor Foundation seeks to raise public awareness, support individuals and families of individuals facing this disease, and to support advanced research into brain tumors.
/uploads/images/website-links/Lemonhead1a.jpg The Kevin J Mullin Memorial Fund for Brain Tumor Research

The Kevin J. Mullin Memorial Fund for Brain Tumor Research, based in the USA (Lancaster, Ohio), conducts an annual 5 km run/walk from which the proceeds go to brain tumor research.
/uploads/images/website-links/Ironmatt1a.jpg The Matthew Larson Pediatric Brain Tumor Research Foundation

The Matthew Larson Pediatric Brain Tumor Research Foundation seeks to raise the awareness and funds need to overcome pediatric brain tumors and to help the children and families affected by it.
/uploads/images/website-links/seebaum2a.jpg The Tanner Seebaum Foundation

The Tanner Seebaum Foundation is a US-based (Centennial, Colorado) non-profit organisation that strives to fund medical research that will lead to a cure for this terrible disease and places special emphasis on the treatment of Ependymoma and Glial tumors of the brain and spine.

/uploads/images/website-links/TugMcGraw1a.jpg Tug McGraw Foundation

The US-based Tug McGraw Foundation was established to "raise funds for pioneering brain cancer research, increase public awareness of the disease, and support college students who exemplify leadership and Tug’s inspiring 'Ya Gotta Believe' spirit".

United Brain Tumour Support

Located on the Gold Coast, Australia. Contact Pete McLaughlin: 0422 784 885
/uploads/images/website-links/Unlocking1a.jpg Unlocking Brain Tumors

Unlocking Brain Tumors is a US-based organisation to raise funds for brain tumor research and raise awareness. Its lead beneficiary is the Musella Foundation.
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We Can Pediatric Brain Tumor Network

We Can is a (Los Angeles, USA) parent-initiated pediatric brain tumor network that offers information and emotional support to families with children who have brain tumors.

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Werkgroep Hersentumoren

A patient-oriented brain tumour support group in Belgium.

/uploads/images/website-links/WNC1a.jpg WNC BTS

WNC BTS is a US-based (Asheville, North Carolina) adult support group for brain tumor survivors, their families, and caregivers.
/uploads/images/website-links/Worcestershire1a.jpg Worcestershire Brain Tumour Support Group

The Worcestershire Brain Tumour Support Group (WBTSG) in the UK aims to offer information and support to anyone affected in any way by a brain tumour. 


Zimbabwe Brain Tumor Association

The Zimbabwe Brain Tumor Association has a mottowhich  is "achieving through hope and strength"