Policy Work

The IBTA engages in policy work to improve outcomes both in the brain tumour field and the world of rare cancers. We work to represent the interests of people affected by brain tumours in a wide variety of international forums.

 

Our alliance

The IBTA brings together over 100 organisations and charities from around the globe. Many of our supporters work in the most challenging of environments, for example where healthcare, medicines and equipment for brain tumour treatments and care do not exist, are in short supply or difficult to access.

We are led by people with first-hand experience of living with a brain tumour. By working together with other organisations and initiatives we can achieve more.

 

Collaborations

The IBTA is proud to work closely with a range of high level initiatives around the world. One example is our work with the European CanCer Organisation (ECCO).

We had the honour of attending a meeting with the European Commissioner for Health and Food Safety Stella Kyriakides (second from the right), the European Cancer Organisation (E.C.O.) President Dr Matti Aapro (third from the right) and E.C.O Chief Executive Officer Mike Morrissey (far left). IBTA Chair Kathy Oliver is pictured far right.

 

Advocacy

We are involved in a wide range of advocacy activities from raising public awareness of the challenges of brain tumours to advocating for equal access to promising new therapies to encouraging the establishment of brain tumour patient and caregiver organisations in countries where they don’t yet exist.

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ADVOCACY, AWARENESS-RAISING AND INFORMATION

2026 INTERNATIONAL BRAIN TUMOUR AWARENESS WEEK

 (Saturday, 24th October to Saturday, 31st October 2026, inclusive)

Awareness Raising Toolkit available here

The International Brain Tumour Alliance (IBTA) is a unique global network for brain tumour patient and carer groups around the world. We work alongside, and represent, members of our community – including researchers, scientists, clinicians, nurses and allied healthcare professionals – to engage in advocacy, to raise awareness and to share information.


BMIC logoNew resource for people affected by brain metastases

A brain metastases diagnosis raises many questions, often all at once. The Brain Metastases PATHWAY is an internationally-endorsed interactive guide designed to help people living with brain metastases from breast, lung, colorectal and kidney cancers. and from melanoma. PATHWAY is aimed at patients, caregivers and loved ones, helping them find reliable, evidence-based information at every stage of their journey. Developed by the Brain Metastases International Collaborative (BMIC), PATHWAY covers diagnosis, treatment and clinical trials, everyday wellbeing, and planning for the future. You can explore it at your own pace, returning to it whenever your circumstances or questions change.

Read the Brain Metastases Pathway PDF here »

Roche Products Ltd has provided funding for agency support in the development of this resource. Roche has had no input into the content.

IN THE SPOTLIGHT – LATEST ARTICLES AND NEWS

IBTA e-News June 2026 out now

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The IBTA's monthly e-News has now been released and been emailed to all subscribers.

IBTA e-News May 2026 out now

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The IBTA's monthly e-News has now been released and been emailed to all subscribers.

Report of the 6th Biennial World Summit of Brain Tumour Patient Advocates out now

| IBTA News | No Comments
The 6th Biennial World Summit of Brain Tumour Patient Advocates was held in Rome, Italy, in November 2025.

IBTA e-News April 2026 out now

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The IBTA's monthly e-News has now been released and been emailed to all subscribers.

The Report of the 6th Biennial World Summit of Brain Tumour Patient Advocates is available now! Read it online or download here.

The 2024/2025 World Edition of Brain Tumour magazine is now available! Request a free copy here or read it online now.

We are proud to support The Brain Tumour Patients’ Charter of Rights
Read the English language version of the Charter online here.
Read translations of the Charter in various languages online here.

OUR ALLIANCE

The IBTA Alliance

Click on the map above to find out more about the IBTA alliance

The IBTA is a proud associate partner of EURACAN, the European Reference Network (ERN) for rare adult solid tumours which includes a subgroup for brain tumours.

Please click here for more information about EURACAN.

What we do

Advocacy

We collaborate with government agencies, health professional and cancer organisations, pharmaceutical companies, clinicians and research institutes and patient advocacy organisations around the world.
Find out more

Awareness-raising

We strive for wider public recognition of the unique challenges patients with this devastating disease and their families face.
Find out more

Information

We publish a monthly e-News with items of interest to the international brain tumour community. We also publish a periodic magazine called Brain Tumour which is sent for free to recipients in 110 countries.
Subscribe to Brain Tumour magazine and IBTA e-News

Events and conferences

We maintain a constantly updated list of major regional, national and international neuro-oncology conferences and other meetings relevant to brain tumours.
Find out more

Clinical trials

We maintain a list of key online clinical trial portals to help patients and carers locate clinical trial centres and understand criteria for joining a brain tumour trial.
Find out more

Ways you can support us

We would love to hear from you if you’d like to join our Alliance, help promote the IBTA, become a corporate sponsor, learn more about an awareness-raising event or make a donation.
Find out more

The IBTA is grateful to all those who have donated in-kind, pro bono and funding assistance to the IBTA since its establishment in 2005, including grants AND SPONSORSHIPS from the following companies and foundations in the years 2020, 2021, 2022, 2023, 2024 and 2025:
IBTA partner logos

The IBTA welcomes donations from individuals in support of its important work around the world.  For further information, please click here. For more information on corporate sponsorship, click here.